Müllerian Agenesis: Resource Overview

The American College of Obstetricians and Gynecologists has identified additional resources on topics that may be helpful for ob-gyns, other health care providers, and patients related to müllerian agenesis.  

These resources are for information only and are not meant to be comprehensive. Referral to these resources does not imply the American College of Obstetricians and Gynecologists’ endorsement of the organization, the organization’s website, or the content of the resource. The resources may change without notice.

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Resources for Ob-Gyns and Women’s Health Care Providers
External Resources

Resources for Ob-Gyns and Women’s Health Care Providers

Committee Opinion: Müllerian Agenesis: Diagnosis, Management, and Treatment
This Committee Opinion, issued by ACOG in January 2018, discusses the diagnosis, management, and general gynecologic care for patients with müllerian agenesis (also referred to as müllerian aplasia, Mayer-Rokitansky-Kuster-Hauser syndrome, or vaginal agenesis), a condition caused by embryologic underdevelopment of the müllerian duct, with resultant agenesis or atresia of the vagina, uterus, or both.  

External Resources

Beautiful You MRKH Foundation
The Beautiful You MRKH Foundation website provides resources and support for women and girls with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. 

MRKH Organization
The MRKH Organization provides links to legal information, listservs, and other resources for patients with MRKH.

AIS-DSD Support Group
The AIS-DSD Support Group website provides support, resources, and events for patients and families of those with Androgen Insensitivity Syndrome (AIS) and Disorder of Sex Development (DSD).

Accord Alliance
The Accord Alliance aims to promote comprehensive approaches to care for patients and families affected by differences of sex development (DSD).

Center for Young Women’s Health
The Center for Young Women’s Health provides teens and young women with health information, conferences, and educational materials, including an MRKH guide for teens and parents and guardians. It also includes a guide on the use of vaginal dilators.

Seattle Children’s Hospital
Seattle Children’s Hospital provides resources for teens and young women, including a handout for patients and families explaining how to use vaginal dilators. 

Texas Children’s Hospital
Texas Children’s Hospital provides videos on how to use vaginal dilators, including a version with music and one without music.

American College of Obstetricians and Gynecologists
409 12th Street SW, Washington, DC  20024-2188
Mailing Address: PO Box 96920, Washington, DC 20024-9998