HIV/AIDS Resource Guide - Advocacy

Advocacy in HIV/AIDS takes many forms.  Some organizations provide advocacy at the local level, aiming to improve treatment and support programs for persons living with HIV/AIDS in their community.  Other groups work to increase funding for treatment, research, or prevention of HIV/AIDS.  Others advocate for services for specific groups such as children or minorities.  A listing of advocacy groups with their primary focus is provided below.

AIDS Action
www.aidsaction.org

AIDS Action is a national organization dedicated to the development, analysis, cultivation, and encouragement of sound policies and programs in response to the HIV epidemic.  Advocacy and policy information.

AIDS Alliance for Children, Youth, and Families
www.aids-alliance.org/aids_alliance/index.html

AIDS Alliance:  creates and shares information about programs that work for women, youth, children, and families affected by HIV and AIDS; provides a forum for consumers and care providers to build more effective partnerships; advocates for public policies that benefit women, youth, children, and families affected by HIV and AIDS while preventing new HIV infections and searching for a real cure.

AIDS Meds.com
www.aidsmeds.com/

Interactive educational website for patients including ability to check for interactions between antiretrovirals and other drugs or foods.

AIDS Survival Project
www.aidssurvivalproject.org/

AIDS Survival Project is committed to providing people living with HIV the most up-to-date information and support they need to lead healthy, productive lives; serves the state of Georgia.

AIDS Treatment Data Network
www.atdn.org/

The AIDS Treatment Data Network (The Network) is an independent, community-based, not-for-profit, organization that provides treatment access and advocacy, case management, supportive counseling, and English and Spanish language information services to men, women and children with AIDS and HIV, and limited resources.

Black AIDS Institute
www.blackaids.org/

The Black AIDS Institute is the first Black HIV/AIDS policy center dedicated to reducing HIV/AIDS health disparities by mobilizing Black institutions and individuals in efforts to confront the epidemic in their communities.

The Body
www.thebody.com/index.shtml

Extensive information for HIV-infected persons.

Gay Men’s Health Crisis
www.gmhc.org

The mission of Gay Men’s Health Crisis is to reduce the spread of HIV disease, help people with HIV maintain and improve their health and independence, and keep the prevention, treatment and cure of HIV an urgent national and local priority.

Lifelong AIDS Alliance (formerly Northwest AIDS Foundation)
www.lifelongaidsalliance.org/

Lifelong AIDS Alliance is committed to preventing the spread of HIV, and to providing practical support services and advocating for those whose lives are affected by HIV and AIDS.

National AIDS Treatment Advocacy Project
natap.org/

The mission of the National AIDS Treatment Advocacy Project is to educate individuals about HIV and Hepatitis treatments and to advocate on the behalf of all people living with HIV/AIDS and HCV. Their efforts in these areas are conducted on local, national, and international levels.

National Association of People with AIDS
www.napwa.org/

Advocacy organization to promote provision of care, research, housing and other essential services for people living with HIV and to promote HIV prevention.

National Minority AIDS Council
www.nmac.org

National organization dedicated to developing leadership within communities of color to address the challenges of HIV/AIDS.  Includes link for every state HIV/AIDS hotline.

National Native American AIDS Prevention Center
www.nnaapc.org/

The National Native American AIDS Prevention Center's (NNAAPC) mission is to stop the spread of HIV and related diseases among American Indians, Alaskan Natives, Native Hawaiians, and to improve the quality of life for those infected and affected by HIV/AIDS.

Pediatric AIDS Foundation
www.pedaids.org/

The Elizabeth Glaser Pediatric AIDS Foundation works to create a future of hope for children and families worldwide by eradicating pediatric AIDS, providing care and treatment to people with HIV/AIDS, and accelerating the discovery of new treatments for other serious and life-threatening pediatric illnesses.

Project Inform
www.projinf.org/

Project Inform has a hotline (1-800-822-7422 Mon-Fri, 9 am – 4 pm Pacific time, till 7 pm on Tuesday). It also facilitates a women’s program. For information on this program, go to http://www.projinf.org/indexS.html#women. For information on their publications, go to http://www.projinf.org/pub/index.html.

Supporting Networks of AIDS Care
www.hivta.org/

The mission is to provide free assistance to non-profit, community and faith-based organizations with the development or improvement of their ability to provide primary health care and support services to people of color living with or affected by HIV/AIDS.

Treatment Action Group
www.aidsinfonyc.org/tag/

Dedicated solely to advocating for larger and more efficient research efforts, both public and private, to find a cure for AIDS.  Website includes information about many topics in HIV research including drugs in development and vaccine studies.

The Well Project
www.thewellproject.org/

Information for HIV-infected persons, including a link to search for local HIV resources.

Women Organized to Respond to Life-threatening Disease
www.womenhiv.org

The mission is to provide support and information to women with HIV/AIDS and their friends, family, and loved ones and to promote public awareness of women's HIV/AIDS issues and a response for all people with HIV/AIDS.

 

HIV/AIDS Resource Guide Home Page

Contact:

Alicia Luchowski, MPH
Director
Health Care for Underserved Women/ LARC Program
aluchowski@acog.org