Women's Health Registry Alliance
Established in June 2011, the Women’s Health Registry Alliance serves to provide a central, collaborative home for registries that seek to improve women’s health outcomes.
The Women’s Health Registry Alliance will improve women’s health outcomes through collaboration in use and development of multiple registries and databases in order to:
- Engage our women’s health professionals in quality and safety initiatives by providing a cost effective and user friendly infrastructure for database development and sharing across multiple registries.
- Identify effective patterns of care in Obstetrics and Gynecology and women’s Health through tracking benefits, risks, complications, outcomes from both point in time and longitudinal registries to improve clinical outcomes.
- Assure secure, high quality, and interactive data sets that can be used to answer key questions in women’s health.
- Work collectively to harness our health information technology systems, to develop meaningful measures, and to assure common definitions and coding mechanisms to support credible and interchangeable data to registries.
- To evolve as needed to meet the needs identified by Women’s Health organizations and their Fellows to report data required by federal, state, and other regulatory agencies.
One of the recent initiatives of the Women’s Health Registry Alliance was the reVITALize Campaign. In August 2012, the members of the Women’s Health Registry Alliance, in association with the American College of Obstetricians and Gynecologists convened a large, multi-stakeholder conference with the goal of facilitating the national standardization of obstetric data definitions.
As a result of this initiative, over 80 stakeholder organizations from across The United States and abroad were brought together for two days of collaborative deliberation and discussion. You can read more about the reVITALize initiative here
- American Association of Gynecologic Laparoscopists (AAGL)
- American Board of Obstetrics and Gynecology (ABOG)
- American College of Nurse-Midwives (ACNM)
- American College of Obstetricians and Gynecologists (ACOG)
- American Society for Reproductive Medicine (ASRM)
- American Urogynecologic Society (AUGS)
- Society for Assisted Reproductive Technology (SART)
- Society of Gynecologic Oncology (SGO)
- Society for Reproductive Endocrinology and Infertility (SREI)
- Society for Maternal-Fetal Medicine (SMFM)
- Centers for Disease Control and Prevention (CDC)
- National Institute of Child Health and Human Development (NICHD)
- American Association of Birth Centers
- Preeclampsia Foundation
Existing U.S. Data Collection Systems
The members of the Alliance have complied an overview of the existing surveillance systems and registries actively collecting data on women and infants' in the United States. This document will be updated as new systems are developed and will serve as a central data source for information regarding this type of data collection.
Please click here to see the current list.