Patient Education: Crowdsourcing Comes to Pregnancy with PregSource™

The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) has been working with ACOG and several other women’s health organizations to develop a new website and app called PregSource™ to help women track their pregnancy experiences. The data collected through this resource can help improve care for pregnant women by allowing them to record and track pregnancy information and compare their pregnancy and post-pregnancy experiences with other women. 

The PregSource website and app are not officially available yet–they are still in beta testing–but we need your help to encourage your pregnant patients to participate. Ask them to go to https://pregsource.nih.gov/ to register for the beta test.

The goal is to recruit 50,000–100,000 pregnant women and women trying to become pregnant to register. You can feel comfortable recommending participation in PregSource. It not only serves to track pregnancy experiences but provides valuable resources and information.

By using PregSource, women can also help improve pregnancy for future mothers by helping researchers and health care professionals better understand the physical and emotional experiences that women have during and after pregnancy. After a critical mass of data is collected, health care providers will have access to aggregated, de-identified data to help inform maternal care.   

PregSource uses a crowd-sourcing approach, asking pregnant women to enter information about their pregnancies throughout gestation and the early infancy of their babies via online surveys, trackers, and/or mobile apps. In exchange, participants can track their data over time, print out reports to share with their health care team, and see how they compare to other women.

In addition, PregSource will provide participants with links to trusted, evidence-based information about pregnancy management, issues, and complications.

The objective of PregSource is to better understand the range of physical and emotional experiences and alterations in behavior that women have during pregnancy and after giving birth, the impact of these experiences on women's lives, and the perinatal challenges encountered by special sub-populations of women.

PregSource has the backing of the following distinguished organizations: ACOG, American Academy of Pediatrics, American College of Nurse-Midwives, American Society for Reproductive Medicine, Endocrine Society, Association of Women's Health, Obstetric & Neonatal Nurses, Centers for Disease Control and Prevention, Genetic Alliance, Health Resources and Services Administration, Lamaze International, March of Dimes Foundation, National Center for Complementary and Integrative Health, National Heart, Lung, and Blood Institute, National Institute of Environmental Health Sciences, National Institute of Nursing Research, National Institute on Minority Health and Health Disparities, Office of Behavioral and Social Sciences Research, Office of Research on Women’s Health, Preeclampsia Foundation, Society for Maternal-Fetal Medicine, and Society for Women’s Health Research.

American Congress of Obstetricians and Gynecologists
409 12th Street SW, Washington, DC  20024-2188 | Mailing Address: PO Box 70620, Washington, DC 20024-9998